Monday, November 30, 2009
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i went back to the hospital today. found out a lot of scary stuff. i have a synovial sarcoma and it's pretty big for a type of tumor. only 1 out of 5 million girls get this. i guess i'm that lucky 1. yaay. sike. i also found out that i'm gonna have chemo for 6 months, loose my hair, feel shitty, blah blah. i'm scared to go to school with my hair all gone. i don't want too. people starring. ugh! it's so hard to imagine ME out of everyone else who can get this. it's so difficult to take everything in because i been so healthy. but this type of cancer comes back, and i'm scared to die. every time i go to oncology, i feel sick to my stomach. everyone is bald, & seems to be OK with it. i wonder if thats gonna be me. will i ever be OK? i doubt it. its hard listening my dad cry at night talking to himself, "i'm gonna loose my precious baby." i hate this. & wish everything could fast forward as fast as possible.
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Hi Ashley,
ReplyDeleteI am a synovial sarcoma survivor. I found your blog through "google alert". I hope you are being treated by a sarcoma specialist. This is quite important because this disease is so rare. Don't be obsessed by the hair loss. It's a temporary inconvenience. And your hair will grow back more beautiful than ever.
Good luck in your journey!
Elodie
P.S: good sites to find information about sarcoma are the sarcoma alliance website and the Liddy Shriver initiative website.
ashley , i was thinking that a ton of us at school should cut our hair off, just for you . <3 like me , naheel, kaitlyn and all them. idk if they'd be willing to do it though. ahah.
ReplyDeleteAshley,
ReplyDeleteI saw you on tv tonite and saw your story. I am happy that Desean is playing
For u tomorrow. As soon as they said that ur cancer had spread 2 your lungs
I knew it was sarcoma. I have synovial sarcoma too. Cancer sucks so
Bad and nobody completely gets it. I feel for u I really do. Enjoy the
Game tomorrow and keep smiling the best u can. Jen from NJ